These are some of our members favorite links.
This information is provided by PACT for informational
purposes and is not an endorsement or recommendation for treatment,
diagnosis's or services. Some topics are controversial and
opinioned. They are listed as a convenience to the user to assist in
the search for information. Many sites contain links and other
information on relegated topics. Individuals with an autism spectrum
disorder are unique and all options must be explored by the family,
professionals and that individual. Please forward any suggested
links and report any broken or inappropriate links to the aldawno@comcast.net.
Link topics on this page <click on the
topic>
| Support
Groups
New Jersey Support and Parent Support Groups |
Medical
|
Research Sites
and Information Sites
Information Sites & Clearinghouses
|
| Government and
Law Links
|
Miscellaneous |
|
New Jersey Support and Parent Support Groups <top>
| ARC of New Jersey |
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| ASPEN
|
ASPEN ® is a regionally-based non-profit organization headquartered in New Jersey, with 11 local chapters, providing support, information and advocacy to families and those individuals whose lives are affected with Asperger Syndrome, PDD-NOS, High Functioning Autism, and related disorders. | ||||||||||
| Association of Schools and Agencies Serving the Handicapped | ASAH (Association of Schools and Agencies Serving the Handicapped) - Serving individuals with special needs. | ||||||||||
|
COSAC - Center for Outreach and Services for the Autistic Community (main site) |
PACT Members should join this valuable group. COSAC is
a new Jersey organization. (Center for Outreach and Services
for the Autistic Community).
Check out the two specific links directly to key pages on their site. | ||||||||||
| Parents of Autistic Children (POAC) | Another Parent Support Group Ocean County New Jersey - good information and good links. | ||||||||||
Autism Society of America & ASA Chapters <top>
Autism Society of America (main
site)
|
All PACT Members should join ASA. ASA is a national group and PACT is the South Jersey ASA Chapter #532. |
| New
York New York Families for Autistic Children. (main site)
|
New York Chapter. Mostly relating to New York, there are some very good video's on a variety of topics. |
| Pennsylvania
Greater Philadelphia Chapter of the Autism Society of America |
Pennsylvania
Chapter. Lots of good information, some of local content for
Philadelphia and New Jersey.
|
| Autism Network International | Autism Network International, an autistic-run self-help and advocacy organization for autistic people. |
| Autism Society
of America |
All PACT Members should join this valuable group - The ASA is a national group and PACT is the South Jersey ASA Chaper #532. |
| National Information Center for Children and Youth with Disabilities |
NICHCY is the national information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals. Our special focus is children and youth (birth to age 22). |
| National Parent Network on Disabilities (NPND) |
The mission of the National Parent Network on Disabilities (NPND) is to provide a presence and national voice for ALL families of children, youth and adults with disabilities. |
Information Sites & Clearinghouses - <top>
| About.com: Autism |
Our unique network is run by a professional Guide who is carefully screened and trained by About. Guides build a comprehensive environment around each of their specific topics, including the best new content, relevant links, How-To's, Forums, and answers to just about any question. |
Childnet.tv main site
|
Dan Marino Foundation.
Great site with lots of information. Video clips on a variety topics from 3 minutes to 90 minutes. Topics such as ABA, Auditory Training, etc.). |
| CDC Early Development Signs | Section of the CDC (Center for Disease Control) that clearly details the development milestones of normal child development. It is an excellent site. |
| Development Delay Registry (DDR) | A nonprofit organization dedicated to meeting the needs of those working with children who have developmental delays in sensory motor, language, social, and emotional areas. |
| do2learn | The do2learn.com
site was designed originally for individuals with autism and other
learning disabilities. It has also been found to benefit anyone with
a need to learn or relearn basic language and daily living skills -
from young children to adults.
The site provides teacher tips for classroom organization, disability guides and links, and a product guide for teachers and caregivers. |
| Doug Flutie, Jr. Foundation for Autism | The Doug Flutie, Jr. Foundation for
Autism
Established by pro football player Doug Flutie, Sr. and his wife, Laurie Flutie, as their life-long commitment to make a difference in the lives of autistic children and their families. |
| First Signs |  First Signs, Inc. is a non-profit organization dedicated to
educating parents and physicians about the early warning signs of
autism and other developmental disorders in early
childhood. |
| Genetic & Rare Conditions Site | Site with multiple references to many other sites of genetic disorders. Recommended by PACT's recent guest speaker - Dr. Andrew Levitas. |
| Medications | Web site with information about many common medications. |
| Great Plains Laboratory |
Testing for food and other allergies. |
| Autism Autoimmunity Project / VIC (Vaccine Injured Children) |
The Autism Autoimmunity Project (now -VIC [Vaccine Injured Children)] is a non-profit charity dedicated to obtaining funding for independent research addressing immune and immunogenetic abnormalities in autism.
|
Association of American Physicians and
Surgeons
(main page)
|
The Association of American Physicians and Surgeons (AAPS) is a non-partisan professional association of physicians in all types of practices and specialties across the country. Many topics are covered which will be of interest to parents of children on the spectrum. |
| CDC | Center for Disease Control. |
| National Vaccine Information Center | The National Vaccine Information Center (NVIC) operated by Dissatisfied Parents Together (DPT) is a national, non-profit educational organization founded in 1982. It is the oldest and largest national organization advocating reformation of the mass vaccination system and is responsible for launching the vaccine safety movement in America in the early 1980’s. |
| Thinktwice Global Vaccine Institute | One of the most comprehensive sites on the subject -- this is an excellent place to find pertinent information on all aspects of vaccines, including books, support groups, laws, websites, etc. |
| Vaccine Adverse Event Reporting System (VAERS) | Part of the FDA site at www.fda.gov/default.htm |
Research <top>
| Autism Research Institute | Biomedical and educational research in the field of autism and related disorders. |
| Autismspeaks
Note: National Alliance for Autism
Research (NAAR), Cure Autism Now, and ACRE are now merged into one
organization. |
Dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; to raising public awareness about autism and its effects on individuals, families, and society; and to bringing hope to all who deal with the hardships of this disorder. We are committed to raising the funds necessary to support these goals. |
| Center for the Study of Autism | This site contains a rich archive of articles covering autism and related disorders, as well as a large link list. |
| Organization for Autism Research (OAR) | The Organization for Autism Research (OAR) was created in December 2001–the product of the shared vision and unique life experiences of OAR’s seven founders. Led by these parents and grandparents of children and adults on the autism spectrum, OAR set out to use applied science to answer questions that parents, families, individuals with autism, teachers and caregivers confront daily. No other autism organization has this singular focus. |
| Autism Network for Dietary Intervention | Providing Help And Support For Families Using A Gluten & Casein Free Diet In The Treatment Of Autism And Related Developmental Disabilities. |
| Collected Net Articles of Dr. Kalle Reichelt | Articles about about diet and behavior connection |
| Dairy-free products | such as puddings and drinks |
| Feingold Association of the U.S. | a dietary connection to better behavior, learning, and health |
| GCFD - Gluten and Casein Free Diet | Successful Diet Intervention for Autism and PDD - The Gluten and Casein Free Diet - This is a great site! |
| Gluten- Free.org | Information about gluten free products and services. |
| GlutenFreeMall | Your Special Diet Superstore |
| Kininkkinnick | For People with Celiac Disease and other Food Intolerances and Allergies |
| Lisa Lewis | site for special diets |
| Livingwithout | For People with Food and Chemical Sensitivities |
| Floor Time | This is an excellent summary of Greenspan's work and this site will provide you with an understanding of how floor-time as an intervention can be useful |
| Healing Arts | Alternative and Innovative Therapies for the Treatment Of Autism |
| New England Center for Children | The New England Center for
Children provides state-of-the-art education and individualized treatment for children with autism and related disabilities. The Center is dedicated to helping individuals reach their potential and live productively; to minimizing dependence and maximizing independence; and to eliminating isolation by increasing social, educational, and employment opportunities through integration into all aspects of community life. |
Other interesting Spectrum Disorder related links <top>
| American Hyperlexia Association (AHA!) | Non-profit organization comprised of parents , speech, language, and education professionals, with the common goal of identifying hyperlexia, promoting and facilitating effective teaching techniques. |
| Asperger.org | Non-profit organization committed to providing the most up-to-date and comprehensive information on Asperger Syndrome and related conditions. |
| Future Horizons | Future Horizons is the world leader in autism/Asperger's Syndrome publishing and conferences. R. Wayne Gilpin is its President and the father of Alex, also author of the book "Laughing and Loving with Autism." He says, "So, because Alex came into my life, I found a mission. It is to bring options to you to assist in improving the world of all those who are challenged with autism or Aspergers Syndrome." |
| OASIS | Online Asperger Syndrome Information and Support - Social Stories by Carol Gray |
| ADA Document Center | ADA Statute, Regulations, ADAAG (Americans with Disabilities Act Accessibility Guidelines), Federally Reviewed Tech Sheets, and other assistance documents |
| Autism National Committee (Autcom) |
Autcom is a group dedicated to promoting "Social Justice for All Citizens with Autism. |
| Individuals with Disabilities Education Act | Contains information about the IDEA Amendments and other resources for special needs students |
| Office of Special Education Programs Technical Assistance Center on Positive Behavioral Interventions and Supports | downloadable materials on PBIS _blankics. |
| Special Education News | Covering breaking news in grades pre-K through 12. |
| Special Education Resources on the Internet | A collection of Internet
accessible information resources of interest to those involved in
the fields related to Special Education - links on:
A great site for information & links |
| Wrightslaw.com | Parents, advocates, educators, and attorneys come to Wrightslaw for accurate, up-to-date information about effective advocacy for children with disabilities. Hundreds of articles, cases, newsletters, and other information about special education law and advocacy in the Wrightslaw Libraries. Sign up for the free newsletter - one of the PACT Webmaster's favorite sites! |
| New Jersey State Department of Human Services | New Jersey State Department of Human Services. |
| New Jersey State Legislature | New Jersey State Legislature |
| New Jersey State Office of Special Education | New Jersey State Office of Special Education. |
| New Jersey State Site | Links to government sites and the office of the governor. |
| U. S. Department of Education | OSERS: Office of Special Education and Rehabilitative Services OSEP: Office of Special Education |
| US House of Representatives | US House of Representatives |
| US Senate | US Senate |
Sibling Support Links<top>
| Siblings of Autism | An on-line support group for siblings. |
Working & Job Support Links for those in the Autism
Spectrum <top>
| Choosing the Right Job for People with Autism or Asperger's Syndrome | Autistic author Temple Grandin presents important considerations for the employment of people with autism, emphasizing the need to avoid jobs that place high demands on short-term memory. Covers visual or non-visual thinkers and individuals who are non-verbal or who have poor verbal skills. |
| Making the Transition from the World of School into the Work World | Grandin describes the difficulties of the transition, citing two follow-up studies of adults with autism who have made a satisfactory adjustment |
Miscellaneous <top>
| EMS Booklet |
Manual
to train First Responders, including EMTs, firefighters and police
on how to be prepared to work with autistic individuals in a crisis
situation.
Written by high school junior, Corey Olson, whose brother Kevin is
on the spectrum., the manual was sent to 53 police departments, as
well as 40 EMT stations in |
| Police and Autism | Police and Autism - Avoiding unfortunate situations. |
Revised: May 20, 2008